Wednesday, July 13, 2011


Rules? Who needs them. I've never been a good one to follow rules, however this being so sick crap I might have to be.  My natural instincts is to do the opposite of what I'm told. I'm not a brat, or an asshole, but I don't like being told what to do. I am my mother's daughter for sure and that's why we tend to get into trouble whenever we are together. It's the only life I know.

I got my Immunosuppresants tonight, and the booklet on the rules should be a novel. This will be hard. The pills are huge too, and if I do have to take them with me anywhere the bottle won't fit in my little red purse. Yes I know I have pill separators, and smaller containers but it's the principle.

The rules:
  • If in sun, highest sunscreen/hats/sunglasses 
  • but don't be in the sun.
  • Empty stomach, 2 pills twice a day
  • Do not lie down for 10 minutes after taking the pills.
  • Don't take it at bedtime
  • Nothing containing magnesium, 2-3 hours before or after
  • No Calcium 2-3 hours before or after taking the pills
  • No antacids, buffered tablets, vitamins, minerals.
  • No dairy, or zinc.
  • No iron (This is the big one since I need iron to you know, keep alive).
  • No aluminum - yes including applying deodorant 2-3 hours before or after taking the pills. 
  • No juice
I will really need to track everything that I do.

Tomorrow I start in the adventures of immunosuppresants. If you have a cold or a flu, I love you but please stay away.


  1. If they help then I think you can handle it. Its not like they said no reality TV shows.

  2. Comment from Rose - (blogger wasn't allowing her to comment here for some reason)"Been trying to post a comment but Blogger won't allow's been acting up for weeks. Here's what I tried to post: While it may seem daunting to many, it necessary or the side effects are worse than the drug. Strict adherence is always the key. You can do this, Rhi. Ask the doc about the iron. Perhaps taking it severals hours, even up to 12 after meds will be okay. Keeping you in good thoughts as you start this journey."

  3. Hey Rhi, I hope that the benefits make the rules worth following and that you seem some relief. Hugs and love to you! Kellye