Monday, July 25, 2011


Nothing feels better than having a doctor agree with you.

Had my GP appointment today and again, I am so lucky to have found her. She is wonderful, really trying to get some answers - and is very much on my side. She even says I look great, much better than when I first saw her last year. 

When I mentioned the dermatologist put me on Tetracycline, she said "No, you don't have to take it, it is a horrible medication." Done, awesome. No more TZ's for me. She gave me a prescription med for the
same results wanted but it is a topical cream. However, this is not covered by my current drug plan so full pop is very expensive and we'll have to see what we can do about that.

Again she wants me to increase the LBP (amitriptyline) dose - so I am considering that, but I do not want to balloon up, I know that shouldn't be a concern especially from where I am coming from - but it is a concern, I don't have the funds for new wardrobe if I do. 

She ordered new blood labs, full round of ANA's to see where that is now as the last ones did show possible remission for lupus however that could be false since it was shortly after the blood transfusion. 5-6 vials of blood vampired today, plus other samples had to be given.

Next will be starting the official path for MS testings. I wait for the call to go into the hospital for these rounds. 

Never ending, always a mystery - however hoping for more answers, even if they are non-answers. 

What it is is hard to determine, what it isn't is almost harder. "Are you there doc, it's me, Rhian.

One more tripped out even of the day, I drove home. My usual 3 mile walk round trip - I drove home. A real car. The drive was fine but due to the pain it was hard since the pain in my legs and feet is so bad that I had a hard time feeling the gas pedal - I sometimes had to physically look at where my foot was. Interesting, and much better than before since I never thought I could drive again, this was quite the big accomplishment!


  1. I felt the same after seeing my new Neuro for the first time. A doctor finally agreed with me! She is being SO thorough - testing for lupus, MS, some other crap. I had 14 vials of blood sucked out of me two weeks ago and am waiting for my 4 MRI's scheduled next week - that's how thorough.

    It's good to finally be taken seriously, huh?

    Congratulations on the driving!! It's been two and a half years since I've driven, and it used to be one of my favorite things.

    Much love and hugs to you!

  2. So glad you had a positive experience with the doc. Are you still on the immunos? Hopefully driving will be in the cards for you for quite some time. More independence is always nicer. I will keep you in pryaer about finding the topical cream at a price you can afford. :) ~Rose

  3. I'm glad you have such a great dr now! I'm going to be seeing a new one soon, and I hope I have finally found one that will be helpful and such too! And yayyy on driving!