Showing posts with label lupus pain grief independence loss. Show all posts
Showing posts with label lupus pain grief independence loss. Show all posts

Monday, July 12, 2010

Epic Fail

Is there such a thing as karma? I used to think so. I thought that not quite everything had a reason, but there was something that connected us to people and events.

I keep forgetting that I can't drive now. Back to this independence loss, it sucks. I had a very long involved dream where I was driving on a highway, and kept swerving to avoid a dark tunnel. I suppose that's what the hardest part of the days are like, fighting to stay out of this tunnel.
Yesterday we went out for my mom's birthday dinner. I had some anxiety about  going out. It's just so very hard. The dinner was lovely, but again with the not able to walk, so the wheelchair and those challenges - it comes with it's own set of pains. The restaurant has a few stairs to the dining room, so they haul out a ramp, and there come the stares. I can't take the looks I get. I wish people can be honest and ask me what is going on. I'm more than okay with that. 

We need this awareness - this is truly an evil disease.

Today I am of course, I am feeling the effects. I have new pains in my back, shoulders, arms and hands. But that is okay, I get it. I soldier on. 

The tunnel is tempting sometimes. I wonder if it would be anything, but I remember the blackouts and the entire nothing.

I'm not ready to stop fighting, even though I live in bed, I have no job, no car, all the things that a successful adult seems measured by.

The failure is epic.

It is always hovering, and it is taunting me - luring me to that tunnel. 

To be strong, takes heart and soul. Sometimes it is very tiring.

Strength fail.